Things I Pursue After Duskin Leadership Training: A Report from Maudita Zobritania
As a disabled person living in Indonesia, I came into an understanding that there are many things in life that simply beyond my reach. Both society and structural issues I directly experienced makes me believe that the situation I have currently living in left no chance for improvements. Hence, I set my mind straight to face all problems occurred due to my disability with my own way, although they took more efforts or sometimes even directly put me in dangerous situation.
I still hold onto that belief when I get, and eventually choose to take, the opportunity to stay in Japan from Duskin Leadership Training.
Many people told me that there will be a life-altering experience that reconstruct most of our worldview. Today, I can proudly say that my experience in Japan truly changed me and my worldview. During my stay in Japan, I always feel blessed and grateful for the chances to learn about many important issues regarding of PWDs, learn from wonderful people and leaders, as well as directly experience how inclusive society should be. It is really common for PWDs in Indonesia to believe that we are supposed to stay at home and restrict ourselves to explore since our surroundings are not only inaccessible, but could be dangerous for minority like us.
Imagine how surprised I am to know that PWDs, especially wheelchair users in Japan are able to unlock so many opportunities, free to go out with less issues about accessibility, and able to actually have such enjoyment in their everyday life.
I might need to say that my stay in Japan is the first time in my entire life when I use wheelchair for my mobility in daily basis. Mr. Kozo Hirashita or more known as Mr. Shachou from CIL Muchu Center gave me this wheelchair which specially adjusted to fit with my body and needs, and I feel eternally grateful for this wonderful gift. Not only it helps me to mobile from places to places which enable me to experience many memorable occasions, it also helps me to realize that it is really possible to pursue for improvements. As matter of facts, it is really common for me to experience many physical and social problems while in Indonesia. This is due to my habit to force this body of mine to do more efforts more than it should be. From routine pain due to the tiredness in my muscle to my own sense of guilt since most of the times I need to ask for someone’s help for me to access certain places.
Since the first day I obtained this wheelchair, I believe that I could have a much more convenient life. I believe that I could be more independent.
As soon as I came back to Indonesia, I realized that the issues for wheelchair users are quite different here. Here in Indonesia, we do not have accessible and reliable public transportations except in Jakarta (capital city of Indonesia) yet their coverages are limited in multiple main prefectures. Problem is, most area in Indonesia are not accessible for wheelchair users – thus I am required to order special taxi with bigger car in order to move my wheelchair from places to places. As we all know, taxis are definitely not cheap – and bigger one usually costs more. I also need to fold my wheelchair multiple times to put it inside the car – things that I definitely will need helps from another people. Not to mention that it is still hard to find wheelchair repair service, especially those with capabilities to handle electric wheelchair. I also need to mention that there are also issues at the destinations as well. Most location in Indonesia are not accessible in both physical constraints (such as multiple leveling, inaccessible toilet or narrow seating) and unavailability or non-existent important facilities (such as proper ramp and elevator as well as lack of awareness from staffs).
However, I believe that one of the ways to make people realize we need to improve accessibility in Indonesia is make ourselves – wheelchair users, more visible in front of most people. This is important to raise people awareness since people will be able to directly interact with us, some might directly assist us when we face obstacles or difficulties, and people will also see by themselves how inaccessible environment might hinder wheelchair users.
At most times, I conduct research about places I want to visit beforehand so I could understand what should I do and what adaptation I need to conduct. This is necessary for me to reduce risks factor when I visit place that might not be accessible for me. However, gather information about accessibility is proven hard to conduct in vast majority of places in Indonesia thus many disabled people feel discouraged to go out and enjoy various activities.
I reflect back to my own experience in Japan, where I could see many disabled people are able to enjoy a lot of fun activities in so many places. I want to make it happen in Indonesia too. I am committed to gather accessibility information in various places and activities so disabled people, especially wheelchair users would find it easier to gather information and encourage to go out and experience something new.
I conducted surveys to understand situation about accessibility information in Indonesia. Based on the results, all participants told us that they want to do recreational activities and partake in new experiences. However, around 80% of participants find difficulties to obtain information about accessibility which makes most of them discouraged to go out. They also express their worry about the risks of inaccessible places, from inconvenience to danger for their health and condition.
The results from survey lead me to set fundamental for my new project, which focuses on provide information about accessibility in various places and activities across Indonesia. The name for this project is Accessible Leisure (@accessible.leisure in Instagram) and aim to encourage people to engage with travel and leisure activities through accessibility information & curated directories as well as raise people awareness about accessibility issues in everyday life which often overlooked by our society. Main coverages for Accessible Leisure are categorized below:
I officially released this project in October 6th 2023 and gained many supports ever since. Many people said that content from Accessible Leisure helps them to broaden their knowledge and awareness about accessibility, something that most people here are not aware of. Some notable names in both media industry and disability movements begin to notice this project as well, which makes me happy and excited because I could learn so much from them and collaborate with them to make Indonesia more accessible.
Currently, I aim to make Accessible Leisure maintain its consistency to provide information as well as improve how to deliver the information itself. I constantly have conversation with various people in both media industry and disability movement on how to make the information more accessible and how to promote Accessible Leisure hence people will know about its existence and started to gain benefits from it. Several key takeovers from our current discussions are:
For now, I also aspire to have collaborations with various organization focused in tourism and disability issue. I believe that efforts to make Indonesia more accessible needs to be done together with as many people and organization as possible. Furthermore, connection based on mutual benefits and shared values are always proven effective to raise the positive impact and benefits for the society. In the future, I also want Accessible Leisure to establish platforms for people with same interests and concerns to develop meaningful connection.
Accessible Leisure also receive positive respond from many people. Many places we covered actually responded with positive tone and genuine willingness to learn more on how to improve their accessibility. A place literally moved quickly to improve, and they just told me that they already done the improvements. I am really happy to hear that, it means that people within our reach are slowly able to be aware and initially willing to improve. I planned to broaden the reach, collaborate more with various people and organization, as well as start to develop the plan on how to facilitate people – especially PWDs for them to gain network and warm connection through Accessible Leisure. Here in Indonesia, many PWDs stated that they do not have support system and many friends that could understand them. I want to help in this issue as well.
I am forever grateful that my participation in Duskin Leadership Training helps me to understand about many issues in disability inclusion in our society. Moreover, during my stay in Japan I had an opportunity to discuss about my plan to take master course with Dr. Miho Omura from Tsukuba University and she introduced me to Mr. Hidzume Masafumi from Nozominosono (National Center for Persons with Severe Intellectual Disabilities). Not long after my arrival in Indonesia, Mr. Hidzume offered me an opportunity to work as a researcher in Nozominosono– a chance that I happily accept. I believe that my choice to participate in Nozominosono will not only shape my capability in research, but also enable me to contribute more in disability movement and society.
As a researcher in Nozominosono, I am responsible to assist current on-going research in both data collection, analysis, reports and translation. It feels really exciting since I am one of the youngest in the team, and majority of the team are people with years of experience in their fields. Although sometimes I feel inferior compared with them, I am grateful since I also could learn so much from everyone. As a new researcher, I am also delighted that they really appreciate and take their time to guide me to be a better researcher.
There are some projects developing by Nozominosono which I also take part in. First project is collaborative efforts between Nozominosono, Hosei University, ERIA (the Economic Research Institute for ASEAN and East Asia) and LSPR (London School of Public Relations) which resulted in a report titled “The Current Status and Issues for Healthcare Policies for Persons with Developmental Disorders in Southeast Asia” and guidebook on “Development of Parent Training, Mentoring, Group Coaching Guidelines to Enhance the Quality of Life of Parents of Persons with Developmental Disorders in Southeast Asia”. Both researches analyze current condition of developmental disorders in Southeast Asia, which data was gathered from multiple countries like Indonesia, Philippines and Vietnam.
In August 30th to September 3rd 2023, I was invited to attend multiple meetings and roundtable discussions at Jakarta, Indonesia between Nozominosono, ERIA, Hosei University, LSPR, as well as with representative of House of Representative of the Republic Indonesia (represented by Mr. Muhammad Farhan), National Diet Members Caucus on Developmental Disorder of Japan (represented by Mr. Hiroshi Yamamoto) and Indonesia National Committee of Disability (represented by Dr. Dante Rigmalia). For the first time, I am able to participate in meetings and roundtable discussion with important figures and organizations. That is a wonderful opportunity for me to learn on how to actually pursue for structural change and supports from government and organization. There are many things I manage to learn, especially in how to present our action to stakeholders, how to negotiate with multiple partners, as well as how to ensure that our action could initiate structural change from the government.
Currently, Nozominosono is also working to undertake another research focused on Southeast Asia in the future. I really hope I could participate more and grow my capability, so I could contribute more to the better world for people with disability in Indonesia.
This report concludes the early rise for me to contribute more into disability empowerment and inclusion. I believe that this is just the beginning and I need to develop myself even more. My journey helps me to cross path with so many amazing and inspiring people, which I really aspire to have their capability, passion, as well as dedication to contribute more and more to the world we currently living in.
In short, Duskin Leadership Training unlocked the door that I myself never realized that I always have and helps me realize what I am aspire to be for my future.
Currently, I am trying to learn how to be a better researcher under the guidance of everyone in Nozominosono. Under their genuine care, I slowly develop my skills and hopefully could contribute more in deeper research not only for intellectual disabilities but also disabilities in general which Indonesia – my country, is still really lacking. I also want to learn on how to convert the results from the research into action planning and actual implementation.
Lastly, while working as a researcher I also take the chance to teach Japanese language through online platform, an effort to help me improve how I deliver and present information and my thoughts into larger audience.
Hopefully I could tell stories about my growth in my next report.
Best Regards
Maudita Zobritania